Welcome to Rare!Together

Rare!Together is a EURORDIS project to help in the creation, operation and management of European Rare Disease Federations. The documents you can find here serve as a “Guide to Establishing and Developing a European Rare Disease Federation”, a Good Practices reference manual as well as a tool kit reaching out to patient organisations everywhere and anywhere who are considering setting up a European Patient Group Federation, as well as helpful information for existing European Federations on subjects like fundraising.



Mentoring Topics: Ask a question or share your experience

Please look for your area of interest under the following topic headings. By clicking on any one of these you can read what is known on a subject, ask a question related to this topic, answer a previous question based on your experience or add to an existing answer:

*If you are looking for something and don’t find it here under one of these headings, please let us know and we’ll try to correct it or re-direct you!