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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Blogs
Fundraising blogs
Our own Nick Sireau from Alkaptonuria (AKU) UK has a great blog, lots to do with fundraising, at http://akurarediseaseguide.wordpress.com/category/fundraising/ Any questions, please email him directly or leave him comments.
Blogs
Are usually maintained with commentary, descriptions, or other material (like graphics or video). Blogs provide commentary or news – health is a common blog subject; others function as more personal online diaries. A typical blog combines text, images, and links … Read More
Posted in Advocacy & Communication, Blogs
Tagged blogs, rare diseases