Funding

Code of Good Practice

The valuable and serious work of patients’ groups and the service they provide needs to be recognised, valued and supported. However, most groups are struggling to find sufficient, diversified resources, to fulfil their mission and objectives and remain independent, whether … Read More

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Cross border tax relief

In a landmark decision, the European Court of Justice ruled on 27 January 2009 that national restrictions on tax relief for cross border donations to charities in other European Union Member States are unlawful. This decision has significant implications for all charities throughout the EU. Read More

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Executive Agency for Health and Consumers (EAHC)

The Executive Agency for Health and Consumers was created on 1 January 2005. The EAHC implements the EU Health Programme, the Consumer Programme and the Better Training for Safer Food initiative. There are various funding possibilities under the EU Health … Read More

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Financial management

All organisations need money. Alongside staff, money is the one thing that takes up most management time. Good financial management involves the following four building blocks: 1. KEEPING RECORDS The foundations of all accounting are basic records that describe your … Read More

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Financial Support by Commercial Companies

EURORDIS has written the paper “Eurordis Policy on financial support by Commercial Companies” to define a set of principles, which can help other patient organisations to define their own rules and principles. Donwload “Eurordis Policy on financial support by Commercial … Read More

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Framework Program 7 (FP7)

The objective of health research under FP7 is to improve the health of European citizens and boost the competitiveness of health-related industries and businesses, as well as address global health issues. The Health theme is a major theme of the … Read More

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Fundraising

A ‘donation‘ is made to an organization (or a specific activity such as a conference) with an objective in mind – sometimes simply to get a good image. This is critical to understand when we approach a potential sponsor – … Read More

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Paying to fundraise?

While many, if not most, Community Patient Organisations cannot afford to pay to fundraise, there are a number of services out there who, for relatively small amounts, offer connections with funders (lists), classes on how to best fundraise (write a … Read More

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Transparency

Eurordis believes that transparency cannot be restricted to the narrow issue of transparency on funding – a necessary but not sufficient condition of transparency. Read the Eurordis position paper on Transparency: Eurordis_position_transparency_oct05

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Webinar: Crowdfunding and Rare Diseases

There has been an increase in crowdfunding projects and websites over the past year. It seems that crowdfunding (gather small amounts of money from individuals) and rare diseases (dispersed population) could make a good match. Rare Connect organised on October … Read More

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