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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
News
US Conference on Rare Diseases and Orphan Products
October 11 – 13, 2011, Washington DC DIA, http://www.diahome.org/DIAHome/FlagshipMeetings/home.aspx?meetingid=26189 Join all stakeholders for a unique opportunity for all who are focused on rare diseases to gain a common understanding of the previous and emerging challenges and opportunities and strategies for … Read More
Posted in Article of the week, News
Cross Border Health Care
January 19, the European Parliament voted in favour of the EU Directive on patients’ rights in cross-border healthcare, an important step forwards for all patients in Europe. Read More
Posted in Article of the week, News
Tagged Cross border health care, Europe, rare diseases