-
The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Is there a best country to register a Federation ?
International Charities under English Charity Law
Sharing experience – Why Become an English Charity? Since the MGA (Myasthenia Gravis Association) became a member of EURORDIS I have had several discussions with colleagues from other patients’ groups about how best to achieve a recognised legal status as … Read More
Is there a “best” country to set up the Pan-European organisation?
Questions It would be lovely to have an EU-recognised system, that gives non-profit status Europe-wide to associations. Right now, that is not the case. This is exactly one of the first questions that comes up in our Rare!Together project, to … Read More