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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Statutes
Mission statement
A Mission statement describes the organization’s: Values Target Audience Core Services Unique Attributes A mission statement is a succinct statement that conveys your organization’s reason for being. Coming up with an effective mission statement is worth the time and effort. … Read More
Statutes
The statutes (or articles of incorporation, charters, constitutions, articles of association, etc.) are established when the organization files for incorporation with the appropriate state agency. A Board of Directors gets its authority from the articles. This governing document specifies, for … Read More
EURO HSP Statutes
EURO HSP STATUTES (Registered at the Prefecture de Police de Paris on 2010/07/21. Ref number W751205920 TITLE-AIM-SEAT Article 1 It is based, among the adherents to these statutes, an association governed by the law of 1 July 1901 and its … Read More
ECHDO Statutes
These Statutes regulate the operation of the European Congenital Heart Disease Organization (ECHDO), registered as an International Not-for-profit Organisation under Belgian Law, Registration Number XXXXX, in 2009. Article 1. NAME AND REGISTERED OFFICE 1. The name of the Association is: … Read More