on RARE DISEASE DAY 28th Feb 2013

The purpose of the AHC federation of Europe is to unite all AHC patient associations in Europe, to create a synergy and a critical mass in order to achieve the following objectives:

  • Promote the awareness of AHC at European level.
  • To promote and support the research on AHC.
  • To develop a better quality of life for all the persons affected by AHC and their families.
  • Represent the European AHC community within EU in regards to social and health politics, investment in scientific research and drug development
  • Members are all current AHC organizations in Europe.

More information:

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