Welcome to Rare!Together

Rare!Together is a EURORDIS project to help in the creation, operation and management of European Rare Disease Federations. The documents you can find here serve as a “Guide to Establishing and Developing a European Rare Disease Federation”, a Good Practices reference manual as well as a tool kit reaching out to patient organisations everywhere and anywhere who are considering setting up a European Patient Group Federation, as well as helpful information for existing European Federations on subjects like fundraising.



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