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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Good international practices
Good international practices – European Medecines Agency
EMA criteria One of the best examples of good international practices certainly are the European Medecines Agency’s Criteria to be fulfilled by Patients’ and Consumers’ Organisations involved in EMA Activities: The organisations should be established at European Union (EU) level, and … Read More
Posted in Good international practices, Governance
Tagged EMA, European Federation, good practice
Mission statement
A Mission statement describes the organization’s: Values Target Audience Core Services Unique Attributes A mission statement is a succinct statement that conveys your organization’s reason for being. Coming up with an effective mission statement is worth the time and effort. … Read More
Posted in Action Plans, By-laws, Good international practices, Statutes