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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
By-laws
By-laws
By-laws are the set of rules under which the organisation will operate. They typically include such items as (a) number of members, term length, nomination process, committees, and meetings; (b) fiscal year/accounting cycles, committees, and officers’ responsibilities; (c) methodologies, tools, … Read More
Posted in By-laws, Governance
Tagged by-laws, statutes
Mission statement
A Mission statement describes the organization’s: Values Target Audience Core Services Unique Attributes A mission statement is a succinct statement that conveys your organization’s reason for being. Coming up with an effective mission statement is worth the time and effort. … Read More
Posted in Action Plans, By-laws, Good international practices, Statutes