Sharing Experience

Communications advice for new groups

The toolkit provides ideas, advice and practical tips to help you in communicating with the wider community, and examples of how other Patient Groups have gone about recruiting new members, planning and delivering local initiatives, supporting other local Patient Groups … Read More

Posted in 8 basic steps to setting up a European Federation, Advocacy & Communication, Building a Federation, Sharing Experience | Tagged , , |

International Charities under English Charity Law

Sharing experience – Why Become an English Charity? Since the MGA (Myasthenia Gravis Association) became a member of EURORDIS I have had several discussions with colleagues from other patients’ groups about how best to achieve a recognised legal status as … Read More

Posted in Building a Federation, Is there a best country to register a Federation ?, Sharing Experience | Tagged , |

Sharing experience – IPOPI tool kit for patient organisations

The IPOPI National Member Organisation Skills Manual has been developed to help new organisations to understand a little of what lies ahead and – maybe – to encourage better established organisations to look again at their own organisation. This great … Read More

Posted in Creating the structure, Sharing Experience | Tagged |