Advocacy tools

In advocacy tools you’ll find information that can help you in your local, national or international advocacy activities.

Advocacy tools – Eurobarometer survey

Eurobarometer survey “European Awareness of Rare Diseases ” shows strong public support for rare disease patients Read More

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Talk to your Parliamentarian – Come to Brussels!

All European Parliamentarians are listed by clicking on the country you are from on http://www.europarl.europa.eu/members/public/geoSearch.do?language=EN There you will find their emails to make first contact. Sample message (to edit as necessary!): Patients meeting EU Parliament – first step

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