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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Advocacy tools
Advocacy tools – Eurobarometer survey
Eurobarometer survey “European Awareness of Rare Diseases ” shows strong public support for rare disease patients Read More
Posted in Advocacy & Communication, Advocacy tools
Tagged advocacy tool
Talk to your Parliamentarian – Come to Brussels!
All European Parliamentarians are listed by clicking on the country you are from on http://www.europarl.europa.eu/members/public/geoSearch.do?language=EN There you will find their emails to make first contact. Sample message (to edit as necessary!): Patients meeting EU Parliament – first step
Posted in Advocacy & Communication, Advocacy tools
Tagged European commission, MEP