Based on the Arrythmia Alliance toolkit
1. Find your leaders!
2. Establish your mission
3. Register as a Charity/ not for profit organisation
4. Begin fundraising
5. Begin outreach: hold patient education meetings
6. Develop a website
7. Raise awareness on your disease (special day/month of the year)
8. Develop a long range (2-5 year) strategic plan
Download the Arrythmia Alliance Tool Kit: Patient Alliance International Toolkit
Download the toolkit : Toolkit_How_to_develop_a_national_MS_Society