The valuable and serious work of patients’ groups and the service they provide needs to be recognised, valued and supported. However, most groups are struggling to find sufficient, diversified resources, to fulfil their mission and objectives and remain independent, whether funding comes from corporate or public sources.
Patients’ organisations are keen to work in a constructive manner together with all stakeholders to ensure that the credibility of patients’ groups is safeguarded.
For this reason, patient organisations  have developed the following transparent and robust Code of Good Practice to guide the relations between patient organisations and the industry .

We encourage all patient organisations to adopt this Code when engaging in a dialogue, working partnership, joint initiative, and/or when accepting support from any funding source.

Read the full paper here: Code of practice