Membership

People who interact with one another, accept obligations as members of the (pan-European) group, and share a common identity. They define and drive the group they are a part of.
How many members does a group need?
Is a group more “representative” with more members?
Are members family, people with the disease, representatives, national organisations, regional organisations?
How much do members guide the program of the group?

Membership – is it organisational or individual?

The question There are various possibilites. Both organisational as well as individual membership have their positive and negative sides. Organisational membership may be more ” powerful” while individual may be faster in terms of voting and moving forward on projects … Read More

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Membership fees

Are membership fees necessary ? The membership fees promote a sense of shared ownership (John Dart from DEBRA) Membership fees of sick persons are not necessary. Membership contributions of each national association can be useful. (Rudolf Kleinsorge from HSP Europe) Membership … Read More

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Who is a member

Some questions Can there be multiple members from any one country? There may be many members, but generally one country/one vote seems the most desired goal. Should members reflect the whole country they are from or just their individual organisation? … Read More

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