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The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.
Blogs
Blogs
Are usually maintained with commentary, descriptions, or other material (like graphics or video). Blogs provide commentary or news – health is a common blog subject; others function as more personal online diaries. A typical blog combines text, images, and links … Read More
Posted in Advocacy & Communication, Blogs
Tagged blogs, rare diseases
Fundraising blogs
Our own Nick Sireau from Alkaptonuria (AKU) UK has a great blog, lots to do with fundraising, at http://akurarediseaseguide.wordpress.com/category/fundraising/ Any questions, please email him directly or leave him comments.