A European federation, of patients with Renal Genetic Diseases is under elaboration. We call upon all patients groups, associations and federations willing to put the renal genetic diseases high in the agenda at European level to join the initiative in this construction of a European Federation (FEDERG: Federation of European patients of Renal Genetic diseases).
A Kick-off Meeting of FEDERG will be held May 26/Saturday
From 13h15 to 15h15 as a dedicated event during the 49th ERA-EDTA Congress
Room 124M-125M – Level 1 Mezzanine
Palais des Congrès, 2 Place de la Porte Maillot. 75017 Paris France
If you are interested in joining or would like more information then please contact:
The Council of European Rare Disease Federations provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.