Comments for Eurordis RareTogether Knowledge Base http://raretogether.eurordis.org Capacity Building for Networks of Rare Disease Patient Organisations Wed, 06 Oct 2010 19:02:01 +0000 hourly 1 http://wordpress.org/?v=3.0 Comment on Aims of Rare!Together by fragility http://raretogether.eurordis.org/project-aims/#comment-36 fragility Wed, 06 Oct 2010 19:02:01 +0000 http://raretogether.eurordis.org/?page_id=2#comment-36 Dear Sylvie, bon courage!! I am the actual president of OIFE, a European Federation for "osteogenesis imperfecta" (brittle bone disease) and we started in 1993 and now have 24 members. I am on the steering committee of Raretogether, so feel free to ask anything you do not find here and I will try to reply! Ute Wallentin president@oife.org Dear Sylvie,
bon courage!!
I am the actual president of OIFE, a European Federation for “osteogenesis imperfecta” (brittle bone disease) and we started in 1993 and now have 24 members.

I am on the steering committee of Raretogether, so feel free to ask anything you do not find here and I will try to reply!

Ute Wallentin
president@oife.org

]]> Comment on Headquarters/Location by Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether Knowledge Base http://raretogether.eurordis.org/mentoring-topics/building-a-federation/headquarterslocation/#comment-5 Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether Knowledge Base Wed, 08 Sep 2010 09:25:24 +0000 http://raretogether.eurordis.org/?p=242#comment-5 [...] Where to register? What to consider? [...] [...] Where to register? What to consider? [...]

]]> Comment on Pro and Contra European Federations by Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether http://raretogether.eurordis.org/mentoring-topics/building-a-federation/pro-and-contra-european-federations/#comment-4 Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether Thu, 29 Jul 2010 17:37:57 +0000 http://raretogether.eurordis.org/?p=330#comment-4 [...] Where to register? What to consider? [...] [...] Where to register? What to consider? [...]

]]> Comment on Headquarters/Location by Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether http://raretogether.eurordis.org/mentoring-topics/building-a-federation/headquarterslocation/#comment-2 Building Strong European Rare Disease Federations. Things to remember | Eurordis RareTogether Thu, 29 Jul 2010 13:18:46 +0000 http://raretogether.eurordis.org/?p=242#comment-2 [...] Where to register? What to consider? [...] [...] Where to register? What to consider? [...]

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